Tuesday, June 24, 2008
Choices
"You will find," her father said, "that there are choices in life. There are some gray areas. But if you don't follow the rules in life, you will be crushed. "
I turned and saw the daughter stand up, pause and then leave.
The parents sat silently in the bright afternoon sunshine, alone.
Tuesday, April 8, 2008
When your child has a close call
Several years ago, my nephew received testing for muscular dystrophy. There was a different diagnosis in the end which explained his symptoms, but the testing process was lengthy and laborious, covering many months. Then, when one series of tests was negative, it seemed as if the doctor always ordered more tests - on and on. Could be a rare form. Could be this. Could be that. Rare- but fatal - possibilities hung over my sister and brother in law as they weathered through this.
The tests came back and it was none of those. However, I saw the "near grief" reaction in them that's talked about in this article. The illusion that everything is okay, that our kids will grow up to adulthood, was stripped away long enough that there was an understandable emotional reaction. And it's doubly painful to feel this way when others are saying to you "But everything's okay!" as if, somehow, the time you need to catch up to that fact is not legitimate.
What do you do with those feelings? This article suggests talking to other parents who have been through the same thing.
Of course, I'm not saying everyone will go through this, but it certainly explained some of what I saw my family go through. It was helpful in that way, so I figured I'd share it with others. It's a good beginning to exploring what support parents might need where children have illnesses or disabilities where they experience repeated close calls. Getting parents the support they need is a topic I don't think gets enough attention.
Saturday, March 22, 2008
New to the blogroll : The Special Parent
Tuesday, January 1, 2008
Talking to kids about a parent's illness

This past weekend, when my brother in law had a heart attack, I was greatly concerned about my nephews. One is 17 and the other, who is 11, has several disabilities which make coping more difficult. Although there are articles written about how to talk to children about a parent's illness, the important thing I found is to communicate in a way where children and teens are told the information as they can handle it at an age appropriate level while being reassured that their day to day needs will be taken care of. As this cartoon emphasizes, it's important to remember that children and teens may put very different meaning to the words you say. Taking the time to make sure that they haven't misunderstood what was said is important. Some children, depending on their ages, will blame themselves for their parents' illnesses. Others will be concerned about issues you might not even think about. My youngest nephew expressed the most concern to me that his father had to stay in the hospital, away from home for a number of nights, because "the hospital is scary". Because of the number of medical tests my nephew has had during his short life, his father's hospitalization triggered his anxieties. Explaining that his father would be taken well care of by the nurses and doctors seemed to help lower his anxiety level.
[visual description: In the first box of a cartoon, in front of a castle, a cartoon figure says "Raphunzel, sweet Raphunzel, let down your hair". In the second box, a giant rabbit hare is dropped and lands on the cartoon character.]