Showing posts with label prenatal testing. Show all posts
Showing posts with label prenatal testing. Show all posts
Thursday, July 3, 2008
Media Culture Journal issue: Able available online
M/C Journal was founded (as "M/C - A Journal of Media and Culture") in 1998 as a place of public intellectualism analysing and critiquing the meeting of media and culture. Issues are written about a single word topic.
The July 2008 issue of Media Culture journal is available online. It contains the following articles on the topic - Able:
EDITORIAL: Disabling Able - Liz Ferrier, Viv Muller
FEATURE: Refusing Able(ness): A Preliminary Conversation about Ableism - Fiona Kumari Campbell
Mobilising the Monster: Modern Disabled Performers' Manipulation of the Freakshow - Bree Hadley
Disability, Heroism and Australian National Identity - Martin Mantle
Enabling the Auteurial Voice in Dance Me to My Song - D. Bruno Starrs
Ars Moriendi, the Erotic Self and AIDS - Catalina Florescu
Creating Visible Children? - Nicole Mathews
Shattering the Hearing Wall - Donna McDonald
Amniocentesis and Motherhood: How Prenatal Testing Shapes Our Cultural Understandings of Pregnancy and Disability - Fiona Place
Able to Live, Laugh and Love - Veronica Wain
iTunes Is Pretty (Useless) When You're Blind: Digital Design Is Triggering Disability When It Could Be a Solution - Katie Ellis, Mike Kent
Innovation and Disability - Gerard Goggin
Is There an End to Out-Able? Is There an End to the Rat Race for Abilities? - Gregor Wolbring
Wednesday, May 9, 2007
Prenatal testing prompts Down syndrome parents to advocate
"Convinced that more couples would choose to continue their pregnancies if they better appreciated what it meant to raise a child with Down syndrome, a growing group of parents are seeking to insert their own positive perspectives into a decision often dominated by daunting medical statistics and doctors who feel obligated to describe the difficulties of life with a disabled child.
They are pressing obstetricians to send them couples who have been given a prenatal diagnosis and inviting prospective parents into their homes to meet their children. In Massachusetts, for example, volunteers in a “first call” network linking veteran parents to new ones are now offering support to couples deciding whether to continue a pregnancy.
The parent evangelists are driven by a deep-seated fear for their children’s well-being in a world where there are fewer people like them. But as prenatal tests become available for a range of other perceived genetic imperfections, they may also be heralding a broader cultural skirmish over where to draw the line between preventing disability and accepting human diversity.
“We want people who make this decision to know our kids,” said Lucy Talbot, the president of a support group here who prevailed on the hospital to give Sarah and two teenage friends an audience. “We want them to talk to us.”
Via NY Times
Click above to read the entire article.
They are pressing obstetricians to send them couples who have been given a prenatal diagnosis and inviting prospective parents into their homes to meet their children. In Massachusetts, for example, volunteers in a “first call” network linking veteran parents to new ones are now offering support to couples deciding whether to continue a pregnancy.
The parent evangelists are driven by a deep-seated fear for their children’s well-being in a world where there are fewer people like them. But as prenatal tests become available for a range of other perceived genetic imperfections, they may also be heralding a broader cultural skirmish over where to draw the line between preventing disability and accepting human diversity.
“We want people who make this decision to know our kids,” said Lucy Talbot, the president of a support group here who prevailed on the hospital to give Sarah and two teenage friends an audience. “We want them to talk to us.”
Via NY Times
Click above to read the entire article.
Tuesday, April 17, 2007
Whose Planet Is It Anyway?: Just mailed my taxes...
Over at Whose Planet is it Anyway, a post about being "fed up with all the people I'm supporting with my tax money" from a person with autism's point of view:
"And how about the eugenics researchers who are happily munching on all those tasty grants from the National Institutes of Health that fund their autism genetic studies to develop a prenatal screening test? That's my tax money being spent for their genocidal schemes, too."
Click above to read the rest.
"And how about the eugenics researchers who are happily munching on all those tasty grants from the National Institutes of Health that fund their autism genetic studies to develop a prenatal screening test? That's my tax money being spent for their genocidal schemes, too."
Click above to read the rest.
Monday, April 2, 2007
"Disability is a Natural Part of Life"
Over at Monastic Musings, Sr. Edith writes a post about prenatal testing and Down syndrome, bringing out the point that disability is part of life. Definitely worth a read - click above.
Sunday, March 25, 2007
Over at Historical Christian....
Aimee writes a spiritual post about people with disabilities and God's love.
She writes about Bruce, who has a cognitive disability, after he comes out of an institution to live in the community:
"Bruce spent the first half of his life in an institution, and I asked him one time what it was like. He told me stories, in his simple, innocent way, that I cannot reproduce here. He also told me that when he first came out, he was terrified, because he had never been out in the world before, and didn’t know what to do or how to act, found all the noise and activity confusing and terrifying.
But now, he found it a joy, and loved living every day. He always spoke with joy and love of his ability to live in the world, have a job, be around people, and have friends. And it showed – he was a joy to be around."
What a gift to find a post that highlights what people with disabilities can bring to the community rather than one that complains about accommodating them! Thank you Aimee.
She writes about Bruce, who has a cognitive disability, after he comes out of an institution to live in the community:
"Bruce spent the first half of his life in an institution, and I asked him one time what it was like. He told me stories, in his simple, innocent way, that I cannot reproduce here. He also told me that when he first came out, he was terrified, because he had never been out in the world before, and didn’t know what to do or how to act, found all the noise and activity confusing and terrifying.
But now, he found it a joy, and loved living every day. He always spoke with joy and love of his ability to live in the world, have a job, be around people, and have friends. And it showed – he was a joy to be around."
What a gift to find a post that highlights what people with disabilities can bring to the community rather than one that complains about accommodating them! Thank you Aimee.
Friday, March 23, 2007
Prenatal Screenings: Church responds to recommendation for Down syndrome tests
Via St Louis Review Online
Friday, February 9, 2007
Whose Planet Is It Anyway?: Life Is Suffering
Whose Planet Is It Anyway?: Life Is Suffering
An excellent post about eugenics that states in part: "If we aborted every fetus that was ever going to suffer, the human species would promptly become extinct." She also notes that perfection is a moving target and that many children now labeled with disorders would not have been years ago.
"
An excellent post about eugenics that states in part: "If we aborted every fetus that was ever going to suffer, the human species would promptly become extinct." She also notes that perfection is a moving target and that many children now labeled with disorders would not have been years ago.
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