Saturday, November 7, 2009

French parents plan to broadcast life of 32 year old daughter with CP via web

The parents of 32 year old Anne Lamic plan to broadcast her everyday life via the web, saying they want to "allow people to see handicaps in ways that are real, everyday and familiar". They do not plan to film private moments, such as baths and the site includes a warning about her seizures.

Disability advocates disagree, some "dismayed — especially because Anne Lamic, whose family says she has physical and mental abilities comparable to a 1-month-old infant, cannot have a say in the matter", according to the article. Others support it as a way to stop hiding those with disabilities and say that France trails behind the U.S. and Canada "on issues such as visibility and accessibility to public transport and buildings". Still others question why the parents don't take Anne out in public, to which her father, who used to work in a medical care center, said that she needs to be transported by ambulance since she has "to remain lying down".

The website is called Doudou World and can be found here.


Matthew Smith said...

Do you approve of this? I'm not sure I'm comfortable with it. Most people wouldn't want a camera monitoring them 24 hours a day, even if it did shut off at intimate moments. And there's always the danger that they'll forget to put the camera off. But, I guess, if someone's not got the mental capacity to know what's up and therefore to object, you won't get any objections.

Wheelie Catholic said...

I'm not comfortable with it because, as you say, she can't express what she wants. I also think there are far better ways- less intrusive ways- to document every day life with a disability.