Raising Awareness of ALS

Bobby, who is featured in the article I've linked to above, emailed me and asked me to help raise awareness for a cure for ALS (Lou Gehrig's disease). ( He also is promoting legislation in the U.S. Congress to create a nationwide ALS (Amyotrophic Lateral Sclerosis) registry.)

According to the article:

"- ALS, a neuro-degenerative disease, usually strikes people between the ages of 40 and 70.

- Based on loose studies, a little over 5,600 people in the U.S. are diagnosed with the disease each year.

- Once thought rare, it is, in fact, quite common. There are nearly 120,000 cases diagnosed worldwide each year.

- Five to 10 percent of cases occur in families where the disease has already been detected, but the vast majority arises spontaneously among previously healthy adults.

- Most people who are in the late stages of ALS can see and hear but are unable to communicate or move.

- The disease eventually robs them of their ability to move their muscles, breathe on their own, speak or even wink and eye."
{Source: www.alscounts.com/livingpatients.html}

Bobby, who was diagnosed fourteen years ago, was told he had three to five years to live. And how is he spending his time- raising awareness for a cure . He also recently went skydiving and tried NASCAR racing out, spending time with his loved ones, friends and family and enjoying his life.


Click above to read more about Bobby.

[visual description: Bobby, who is sitting in a power chair, is shown in front of a red NASCAR race car near a track.]

{visual description: Bobby is shown in the air during a tandem skydive with an instructor who is giving a thumbs up.]