I was contacted by Paul, a few weeks ago. He is a disability advocate in Africa as well as a wheelchair basketball player. (He is looking for sponsorship and opportunities to travel and play. If anyone can help, please contact him at his email below. )
His writings reflect his thoughts from the work he does as well as a deep commitment toward working for a better future for those with disabilities.
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MY SPACE:
You just want to live your life, like everyone else. But at some point in your young life--probably at the time of diagnosis—and said that you have a disability everything changed and people have treated you differently ever since.
• Most people pay attention to what you cannot do. Especially professionals who think that the person with a disability can not make the best choice thus concentrating on the inabilities instead of building up on the abilities. Few make the effort to see what you can do. And some of what you can do looks different as compared to others, so it's still "wrong" or doesn't count.
I wonder what’s there in a blind person pursuing his or her interests! Throughout your life, you've been surrounded by people trying to "help" you: trying to get you to do things you cannot do--"normal" things--that must be important to them. For instance an employer giving you a paper and a pen and you cant see. Your feelings about these things, and your other wants, needs, hopes, and dreams, don't seem to matter much to anyone else. And for as long as you can remember, people have "placed" you in special settings, surrounded by others who also cannot do "normal" things.
• You're not allowed to have experiences like other people; your parents, teachers, service providers, etc. think you're not ready, not able, not competent. You're also not expected to do what others do, like learning the three Rs, being responsible for yourself, living on your own, having a real job, and more. They also work hard to protect you. So you learn not to expect too much out of life; you learn not to do too much; you learn not to try, because it doesn't make any difference; you learn to be helpless.
• You've never really had friends--not really, not like other people do--no one to call when you're lonely or when you want to share a secret. You'd like to fall in love and kiss and more, but that will probably never happen. You'd like to have the freedom to do what you want, when you want, how you want, and the freedom to say NO--but that seldom happens. There are so many things you want to do, so many places you want to go, so many people you'd like to know, and so much you want to feel--and you've wanted these things for days, and weeks, and months, and years. You've waited and waited and waited; it's so hard to keep waiting. You really feel angry and you also feel sad. When will we unlock the chains we have put to lives of persons with disabilities? This confirms the status of many persons with disabilities in Kenya and developing countries.
• I believe all persons with and with out disabilities were born free is us who have excluded through the barriers that exist: attitude, environment and institutional. When shall I walk free and people stop staring and claiming am a sick person? Some even gossip next to me thinking I can not hear!
• Sometimes one don't feel very important; you don't feel needed; and you haven't accomplished much in your life--but then no one expects these from you, so maybe you shouldn't expect these things for yourself.
• All the different people in your life exert a great deal of control over you, and they probably all have good intentions, but...
The above description may not apply to all people with disabilities, but it applies to far too many--even one would be too many. We can do better! And it begins with empathy: working to understand another's feelings, experiences, and more. This can be enhanced by unlocking the jail terms established for persons with disabilities. This will guarantee exclusive rights and privileges.
Paul M. Mugambi.
shamgpaul@gmail.com
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